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Conquer chiari symptoms11/28/2023 ![]() There is an online link that people who are unable to attend the the event can make an online donation and still be able to support our event.Chiari Malformation Type 1 (CM-1) is characterized by herniation of the cerebellar tonsils below the foramen magnum and the presence of headaches and other neurologic symptoms. Spreading awareness and my story helps educate others about my condition as well brings our community together to support a truly amazing Hospital. This will help myself and so many other Chiari warriors and their families. The hope is that soon we will have enough money raised to open the first Canadian Chiari Research Center at Sick Kids Hospital. We are now well underway in planning our 4th Annual Awareness Walk for Chiari in support of myself Mason Donkin and Sick Kids Hospital. She immediately found herself planning our 1st Chiari Awareness Walk in Bradford. My mother began researching ways of how to conquer my condition as soon as we received the diagnosis. I could not be the boy I am today without all the love, support and dedication of my family, friends and loved ones. ![]() It is now a constant struggle to manage pain. It was now a world that involved my parents researching, new doctors who ran tests, scans and many visits to Sick Kids Hospital. I was a little boy who had to learn about the world of a condition that came with many struggles, pain, symptoms and has NO cure. I was almost 4 years old when I was diagnosed. We had no idea what this was and how it would affect my life moving forward. I was diagnosed with Chiari Malformation. It was a diagnosis that frightened my family immensely, but it was a diagnosis. As soon as I had the MRI, I had an answer along with a diagnosis. He instantly thought there was a need to order an MRI and he referred me to Sick Kids Neurology/Neuro surgery. She then proceeded to refer me to a neurologist. It was the moment where the GI doctor decided to do the upper GI scope and determine my issues were not related to a GI condition. ![]() There would be no more unnecessary testing, no more doctors poking or prodding and no more moments feeling like we were losing our minds. It seemed so surreal and was overwhelming. rectal biopsies, x rays, ultrasounds, celiac testing, cystic fibrosis testing, and multiple blood work sessions. I underwent many tests that were not necessary in the end, i.e. NOTHING worked! She knew the only way to help me, was to continue to share my symptoms with more doctors and specialists. She listened to the doctors recommendations trying everything they suggested. She didn’t believe the doctors! She was persistent and would book another appointment and share my symptoms with yet another new doctor. She would take me to many doctor appointments to be sent home and told by doctors I was fine. I would continually cry, was extremely irritable, encountered many digestive issues and would scream in pain and discomfort for hours on end. From an infant, my parents and family knew something wasn’t right. My diagnosis of Chiari Malformation came as a complete shock. I am 9 years old, I will be 10 on April 30th. ![]() My name is Mason, close family and friends call me ‘Mase’. I would like to take some time to introduce myself to everyone and share my journey.
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